SHALOM!
Finally, after doctor of infections, plastic surgeon doctor, oncologist nurses, finally, an ultra sound showed a thrombosis of the veins. So filled with chemo, then antibiotics, and lastly, a medicine to thin the blood, my arm is returning to normal. And so, had blood work done again so that I can have a 'port' inserted above the chest so that no needles will be needed weekly to start the 8-12 taxol chemo treatments. I dread going in on Isru Chag to hospital to have it done, but we must get this show back on the road so that someday, there will be an end. How divine it is to pretend that I am normal like everyone else just preparing for Pesach/Passover and living life. The only side effect still very evident is my extreme fatigue. I literally fall away early evening. But when I think of Gilad Shalit and other daily tragedies-fallen soldiers each day, I know to be thankful for where I am at.
I wish all ill people a speedy recovery and the strength to cope with what they must.
Happy holiday period to all-Chag Sameach. Until we 'meet' again .
Sunday, March 28, 2010
Saturday, March 20, 2010
ALONG THE JOURNEY OF CANCER-MARCH 20-10
Well, some days have gone by with no entries. The bumps along the road have kept me tired, hurting and I need and needed to rest this body and mind. Apparently my arm swelling was not an infection like they thought, nor a spillage of chemo into my arm, but a thrombosis of the veins, meaning a blood clot of the veins. Thus, I was swollen, had horrific pain, wore a sling to ease the pain of touch from others. Hopefully, both the antibiotics and now the blood thinner medications are helping. All chemo treatments have been put on hold until this all clears up. Basically, I am a get up and go person, but I keep retreating from my activities to rest periods more and more. But each day brings its thanks to be alive; somehow, one learns to live with pain, and to think it could be worse.
So let's not dwell too much on whatever is bothering us-others have it worse. Spring is coming/here, and life goes on. Reading books, good friends writing and being there for me, e mails all help to keep the spirit up, and the wonderful skies awaiting our ventures outside to breathe in this wondrous world.
Be well to any readers, and as one doctor puts it: 'Chin up'!
So let's not dwell too much on whatever is bothering us-others have it worse. Spring is coming/here, and life goes on. Reading books, good friends writing and being there for me, e mails all help to keep the spirit up, and the wonderful skies awaiting our ventures outside to breathe in this wondrous world.
Be well to any readers, and as one doctor puts it: 'Chin up'!
Thursday, March 11, 2010
MARCH 12-10 LAY DOWN MY WORRIES
A full week of 'Will I be put into hospital or not?' In order not to overly worry, I keep remembering the spiritual song sung by the slaves way back when:
I'm gonna lay down my picks and shovels
Down by the riverside,.................
I ain't gonna worry no more, no more,
I ain't gonna worry no more, no more,
I ain't gonna worry no more, no more,
I ain't gonna worry no more, no more!
If worrying will help me, believe me I am the first to worry. But since it doesn't, I keep singing this song over and over to myself changing the first verse to:
'I'm gonna put down my worries and woes'
I keep hoping that the oral anitbiotics will do the trick to heal this infection, but so far not. So I just live daily as much as I can with optimism. My next series of chemo has been put off until this issue is resolved. It seems now that after this Shabat, they will decide one again whether I need to be hospitalized for an infusion of high dosages of an antibiotic. I am like a child dreading any new needle into my arm. There is so much bravery, but now I am running low on trusting a clerk/nurse to be careful.
Oh well, today is what we have. The anticipation of Shabat, of somehow enjoying what we can while we can.
I wish any readers a good week-end, lots of good health coming your way, and for a peaceful mind.
I'm gonna lay down my picks and shovels
Down by the riverside,.................
I ain't gonna worry no more, no more,
I ain't gonna worry no more, no more,
I ain't gonna worry no more, no more,
I ain't gonna worry no more, no more!
If worrying will help me, believe me I am the first to worry. But since it doesn't, I keep singing this song over and over to myself changing the first verse to:
'I'm gonna put down my worries and woes'
I keep hoping that the oral anitbiotics will do the trick to heal this infection, but so far not. So I just live daily as much as I can with optimism. My next series of chemo has been put off until this issue is resolved. It seems now that after this Shabat, they will decide one again whether I need to be hospitalized for an infusion of high dosages of an antibiotic. I am like a child dreading any new needle into my arm. There is so much bravery, but now I am running low on trusting a clerk/nurse to be careful.
Oh well, today is what we have. The anticipation of Shabat, of somehow enjoying what we can while we can.
I wish any readers a good week-end, lots of good health coming your way, and for a peaceful mind.
Tuesday, March 9, 2010
MARCH 9-10 MAN PLANS AND THE UNIVERSE DECIDES
Well, life sure has its sudden surprises, shocks and changes. As I wrote previously, tomorrow, March 10, I was to start my 8-12 weeks of a new form of chemotherapy. But it seems that some infection is in my arm where I get all the blood work done, and it is swollen and hurts a lot. So before putting me into hospital, we are trying oral anti-biotics to see if hospitalization can be avoided, and my next series is on hold for the moment.So life is lived day by day, hoping for the best, adjusting to some pain. As one of my sons told me: each patient will have his/her individual ups and downs along the way. So I am working on trying to keep positive -and pushing out the negative thoughts.
That for sure teaches me that one can hope and plan, but we must leave room for the unexpected in our plans. Sometimes for me it means, just coasting along, appreciating each day, listening to my body when it says to rest more and to just 'be'.
Have a good week to any readers: hope that your time is being spent well.
That for sure teaches me that one can hope and plan, but we must leave room for the unexpected in our plans. Sometimes for me it means, just coasting along, appreciating each day, listening to my body when it says to rest more and to just 'be'.
Have a good week to any readers: hope that your time is being spent well.
Tuesday, March 2, 2010
MARCH 02-10 A SMALL BREAK!
Shalom!
What do I do with one Wednesday, today, before I start at least 8 Wednesdays of a new type of chemotherapy? Thank G. I am somewhat symptom free, except for tiredness and nausea , I seem to be drifting in between chemos and lacking substance in my life. I am used to really teaching and working full time, and volunteering. So I feel somewhat at loss with only some work at the moment. But some of my grandchildren and I went to a soup kitchen on Purim to dish out and serve hot meals to needy people, and altho' extremely tiring for me, it was wonderful to do it and to see at least one of my families doing this now for 2 years in a row. They brought Purim goodies from their whole community to give out, and my heart was delighted.
Anyways, back to my 1 free day of a Wednesday. I hope to visit a dear friend and see her new home-she has been so supportive altho' I rejected her for so long as I couldn't share with her or simply cry non-stop, so I stopped seeing her for so long. And I am going out with wonderful good friends for supper. Hopefully, I can do it all. I tire so easily, and I can't eat great amounts at once-I need small deposits often in my system. The inability to drink is not good for me, and so I rely a lot on soups. I have to keep telling myself to think positive, and not to dwell on what if's etc. I seem to have hibernated within my home, with small outings now and then. But when I teach, I am a different person. Thank G. for some ability left.
Be well, all of my readers. Enjoy the moment-which is what we really have. I have posted on my bulletin board a good thought:
Remember yesterday
Dream about tomorrow
But live today!
I challenge myself and you to do this today,-let's not worry about what could have, should have been in the past-we don't know our future, but are aware of our mortality at some point, but we have the gift of today hopefully!
Talk to you again!
chaya bat sarah bayla
What do I do with one Wednesday, today, before I start at least 8 Wednesdays of a new type of chemotherapy? Thank G. I am somewhat symptom free, except for tiredness and nausea , I seem to be drifting in between chemos and lacking substance in my life. I am used to really teaching and working full time, and volunteering. So I feel somewhat at loss with only some work at the moment. But some of my grandchildren and I went to a soup kitchen on Purim to dish out and serve hot meals to needy people, and altho' extremely tiring for me, it was wonderful to do it and to see at least one of my families doing this now for 2 years in a row. They brought Purim goodies from their whole community to give out, and my heart was delighted.
Anyways, back to my 1 free day of a Wednesday. I hope to visit a dear friend and see her new home-she has been so supportive altho' I rejected her for so long as I couldn't share with her or simply cry non-stop, so I stopped seeing her for so long. And I am going out with wonderful good friends for supper. Hopefully, I can do it all. I tire so easily, and I can't eat great amounts at once-I need small deposits often in my system. The inability to drink is not good for me, and so I rely a lot on soups. I have to keep telling myself to think positive, and not to dwell on what if's etc. I seem to have hibernated within my home, with small outings now and then. But when I teach, I am a different person. Thank G. for some ability left.
Be well, all of my readers. Enjoy the moment-which is what we really have. I have posted on my bulletin board a good thought:
Remember yesterday
Dream about tomorrow
But live today!
I challenge myself and you to do this today,-let's not worry about what could have, should have been in the past-we don't know our future, but are aware of our mortality at some point, but we have the gift of today hopefully!
Talk to you again!
chaya bat sarah bayla
Subscribe to:
Comments (Atom)