This week I was invited to a family wedding and to a Bar Mitzva Kiddush. But lo and behold I found a new invitation, delivered by telephone while I was teaching.
'You are invited to an operation'! said the secretary of the hospital of Sharei Tzedek. Finally, after all this long, long wait, I am called with such an invitation. Well, I cracked up-laughed, and thanked her for inviting me to my operation. And so, I am now packing my light bag, as I have been warned to pack or face being robbed in the hospital, even as I go to the washroom.
I have spent my last few days loving life, enjoying whatever I face-the outdoors, my wonderful teaching in and out of home, my delicious grandaughter over Shabat, dining with my dear relatives. I have been inundated with telephone calls-if only people knew just how much these calls mean , and how even when not faced with a hospitalization, that we people need calls all the time, even for a moment (e mails included). No man is an island! and least I am not, even tho' I love my privacy as well.
So I probably won't write in this blog for a while, depending on my use of my right arm when I come home.
I thank you always for your good wishes and caring
Saturday, November 28, 2009
Monday, November 23, 2009
A MEMBER OF A CANCER CLUB? NOV. 22-09
WHEN I WAS GIVEN MY DIAGNOSIS, I WAS TOLD: 'WELCOME TO THE CLUB.' I.E., the cancer club. My immediate answer was: 'I don't want any part of this-I don't wish to be a member of such a clan'. Well, from Oct. 21 to Nov. 22, I found myself yesterday going to my first meeting at Beit Natan. I was repulsed to attend, but did so, hoping that somehow I could see others coping so beautifully and more than that, to learn something from an expert oncologist.
I sat there, feeling different, not happy to be there, but curious like human beings are at times. We were 5 young women with young families, and my heart broke for them. 4 of us were older women, that is, mature women by age at least. The evening was informative, and I made a good contact with a woman next to me, who has gone thru' so much. I admire all these strong women. My own immediate family keeps telling me of all the successes in cancer operations and treatment, and poo-pooing my concerns. Yet, the head leader, kept referring to our 'illness' and to our ongoing worries and concerns. She knew that this is real for us, and without an immediate end, as others try to tell me. Facing an operation, and chemotherapy, and a period of oral drugs, and weeks of radiation does not sound cut and dry to me. And the reccurence of the cancer is many of those present, plus my own doctors telling me that yes, this worry will always be with us for the rest of our lives.
But life goes on. I took out books from their library on cancer, all free to borrow. I really don't know how I feel about it all-next week's operation is the focus for now. I was the only one there who was before surgery. So I saw lots of wigs worn to cover loss of hair, lots of talk re pills making one ill, etc.
I am busy continuing my life with stocking up in my home, soaking up some sun while walking, staying in contact thru' e mails, and this blog.
May the light of Chanukah approaching reach each and every cancer carrying woman and light our way. We need the support,the hugs, the calls, even by e mail.
Bye for now.
I sat there, feeling different, not happy to be there, but curious like human beings are at times. We were 5 young women with young families, and my heart broke for them. 4 of us were older women, that is, mature women by age at least. The evening was informative, and I made a good contact with a woman next to me, who has gone thru' so much. I admire all these strong women. My own immediate family keeps telling me of all the successes in cancer operations and treatment, and poo-pooing my concerns. Yet, the head leader, kept referring to our 'illness' and to our ongoing worries and concerns. She knew that this is real for us, and without an immediate end, as others try to tell me. Facing an operation, and chemotherapy, and a period of oral drugs, and weeks of radiation does not sound cut and dry to me. And the reccurence of the cancer is many of those present, plus my own doctors telling me that yes, this worry will always be with us for the rest of our lives.
But life goes on. I took out books from their library on cancer, all free to borrow. I really don't know how I feel about it all-next week's operation is the focus for now. I was the only one there who was before surgery. So I saw lots of wigs worn to cover loss of hair, lots of talk re pills making one ill, etc.
I am busy continuing my life with stocking up in my home, soaking up some sun while walking, staying in contact thru' e mails, and this blog.
May the light of Chanukah approaching reach each and every cancer carrying woman and light our way. We need the support,the hugs, the calls, even by e mail.
Bye for now.
Thursday, November 19, 2009
NOV. 30 DATE HAS BEEN DECLARED!
Well, now that I have actually been told the D day, I just continue to plod on daily to try to arrange Bituach Leumi (help in house), to Meuchedet (my health coverage plan), and to continue my life as if there is no day set to totally change my life, at least for now and beyond.
If I think too much, it won't be good, and I am sure I will do enough of that at the last minute.
I am having a lumpectomy initially, with a possible 2nd operation in case they find lymph nodes that need to be removed in addition. That is step one. I will discuss further things further on. I am kind of spaced out, but not really, as I am doing all the preparations on my own, other than when Dr. Olsha tells me that I must bring 'someone' with, then my dear cousin is walking there right beside me. The phone calls have been so helpful and uplifting. The nicest gift anyone can give a person facing difficulties is the gift of time, time to call and listen, time to perhaps visit for a short time if it is wanted by the 'patient'.
And life marches on-Oct. 21-now Nov. 19-soon to be Nov. 30, but many miles to walk until then-to enjoy life's daily blessings and activities.
I wish each and every one who may be following this blog due to illness a refuah shlaimah, a speedy recovery.
Bye for now.
If I think too much, it won't be good, and I am sure I will do enough of that at the last minute.
I am having a lumpectomy initially, with a possible 2nd operation in case they find lymph nodes that need to be removed in addition. That is step one. I will discuss further things further on. I am kind of spaced out, but not really, as I am doing all the preparations on my own, other than when Dr. Olsha tells me that I must bring 'someone' with, then my dear cousin is walking there right beside me. The phone calls have been so helpful and uplifting. The nicest gift anyone can give a person facing difficulties is the gift of time, time to call and listen, time to perhaps visit for a short time if it is wanted by the 'patient'.
And life marches on-Oct. 21-now Nov. 19-soon to be Nov. 30, but many miles to walk until then-to enjoy life's daily blessings and activities.
I wish each and every one who may be following this blog due to illness a refuah shlaimah, a speedy recovery.
Bye for now.
Tuesday, November 17, 2009
THE SPACE OF TIME OCT. 21-NOV. 17 AND COUNTING
To anyone going thru' this waiting game, yes, it is unbelievable. On Oct. 21, I already knew that I have a cancerous gush, an aggressive one at that. But until today, Nov. 17, after many tests and numerous ultra sounds over and over again, I am still waiting for the end of the month hopefully, and not wanting it at all. That meant going to a book meeting, to a Shabat kiddush and learning session, to a week-end bar mitzvah of a dear friend's grandson, and saying not a word to any of them so as to ruin their special time.
Had I known that it would take this long to get the operation part over with, and that is only the beginning part, I probably would never have let my close friends know yet. I assumed that my surgeon would somehow push me in earlier.
Anyways, it is a wonder of life that I go on enjoying each and every moment of teaching, walking, breathing, laughing, and yet pondering constantly-will I live with all of this or after all of this operation, chemotherapy, radiation,etc. So many people tell me the good results for many women, and thank G. for that. But I know from the current literature, that not everyone does make it. And I STILL WANT TO LIVE. So I thank G. for all of you who are supporting me emotionally-I would hate to feel totally alone. Bless all of you who are going thru' a terrifying experience like me, and I pray for all of us to have the strength to deal with it and to overcome if the universe has decreed that for us. Not everything is in our hands, but I will use my hands and head and thoughts to help push myself along. I thank all the more devout people than me who daven for all sick people.
It's so appropriate and lucky for me to have found a learning group about Tehillim even before I was diagnosed. I wait eagerly for every Wed. to attend, and soak in the Tehillim of Shabat prayers that we usually say so automatically.
Well, I've rattled on enough for today. Thank you again for davening for
chaya bat Sara Bayla, and for all the sick.
A good month-chodesh tov=may Kislev bring us who need it so badly light to lighten our path.
Had I known that it would take this long to get the operation part over with, and that is only the beginning part, I probably would never have let my close friends know yet. I assumed that my surgeon would somehow push me in earlier.
Anyways, it is a wonder of life that I go on enjoying each and every moment of teaching, walking, breathing, laughing, and yet pondering constantly-will I live with all of this or after all of this operation, chemotherapy, radiation,etc. So many people tell me the good results for many women, and thank G. for that. But I know from the current literature, that not everyone does make it. And I STILL WANT TO LIVE. So I thank G. for all of you who are supporting me emotionally-I would hate to feel totally alone. Bless all of you who are going thru' a terrifying experience like me, and I pray for all of us to have the strength to deal with it and to overcome if the universe has decreed that for us. Not everything is in our hands, but I will use my hands and head and thoughts to help push myself along. I thank all the more devout people than me who daven for all sick people.
It's so appropriate and lucky for me to have found a learning group about Tehillim even before I was diagnosed. I wait eagerly for every Wed. to attend, and soak in the Tehillim of Shabat prayers that we usually say so automatically.
Well, I've rattled on enough for today. Thank you again for davening for
chaya bat Sara Bayla, and for all the sick.
A good month-chodesh tov=may Kislev bring us who need it so badly light to lighten our path.
Sunday, November 15, 2009
AS TIME GOES ALONG....NOV. 15-09
It'so amazing that you know you have an aggressive tumor, but you must wait your turn amongst the many waiting women, and so you pretend that all is well. After all, I don't feel anything, nor did I from the beginning. But I KNOW!
And so, a most beautiful Shabat passed-lovely company, singing zemirot, laughing at the cutest baby, walking in the sun, davening in the sun for a good Rosh Chodesh, marvelling at the beauty of life, yet, still down deep.. So I grab onto the wonderful moments, cherish each and every person so dear to me, each lovely piece of music, try to live and enjoy daily. Having always worked full time until this year, having some free time to write, read, is so nice. Maybe now I can go back to some volunteering before I won't be able to.
Again, I thank each and every one of any readers to daven for
Chaya bat Sara Bayla , and I wish every one of you a refuah shlaimah and besorot tovot.
Until the next write-in......
And so, a most beautiful Shabat passed-lovely company, singing zemirot, laughing at the cutest baby, walking in the sun, davening in the sun for a good Rosh Chodesh, marvelling at the beauty of life, yet, still down deep.. So I grab onto the wonderful moments, cherish each and every person so dear to me, each lovely piece of music, try to live and enjoy daily. Having always worked full time until this year, having some free time to write, read, is so nice. Maybe now I can go back to some volunteering before I won't be able to.
Again, I thank each and every one of any readers to daven for
Chaya bat Sara Bayla , and I wish every one of you a refuah shlaimah and besorot tovot.
Until the next write-in......
Thursday, November 12, 2009
SOME NEW OBSERVATIONS AND FEELINGS-NOV. 12-09
SOME TIME HAS PASSED, AND DUE TO MY INEXPERIENCE WITH BLOGGING, I HAVE 2 INITIAL BEGINNING ENTRIES RATHER THAN ONE.
THIS PAST WEEK HAS BEEN ONE FILLED WITH TEST AFTER TEST IN PREPARATION FOR ENTRY INTO THE HOSPITAL FOR REMOVAL OF THE 'GUSH'.
THAT INCLUDES BLOOD WORK, A CARDIOGRAM, A BODY IMAGING PROCESS, A 'CT ' SCAN. I DID ALL OF MINE IN A FLURRY, HOPING THAT BY MY SPEED, IT WOULD SPEED UP MY TURN TO QUICKLY ENTER AND HAVE THIS HORRENDOUS MONSTER REMOVED INSTANTLY. BUT SUCH DID NOT HAPPEN. UNFORTUNATELY, THERE ARE MANY WOMEN ON THE LIST OF MY DR. AND OF MANY OTHERS WAITING FOR THIS 'DELUXE' PLEASURE.
IN ONE OF MY BLOOD WORK TESTS, A RATHER INCOMPETENT NURSE COULDN'T FIND MY VEIN EASILY, AND BOTCHED IT UP. BY THE NEXT EVENING, I HAD DEVELOPED AN INFECTION IN MY LEG AND HAND. I COULDN'T STAND OR MOVE MY TOES NOR WALK. IT WAS TRULY A TERRIFYING TIME, AS I DIDN'T KNOW WHAT WAS HAPPENING. BARUCH HASHEM, WITH THE USE OF A CANE WHICH I HAPPENED TO HAVE IN MY HOME, I SOMEHOW MANAGED TO CRAWL, HOLD ON TO WALLS UNTIL THE NEXT DAY, WHEN MY GENERAL PRACTITIONER CONCLUDED THAT IT WAS AN INFECTION, AND SLOWLY, WITH THE USE OF THE CANE, I PROGRESSED BACK TO BEING NORMAL IN MY WALK.
AND NOW AS I WAIT ONE WEEK, 2 WEEKS, SO POSITIVE THAT NOW FOR SURE, MY SURGEON WILL HAVE ME PAGED FOR SURGERY, BUT NOT YET. I HAVE GONE BACK TO HIM AT HIS REQUEST AND HAVE HAD ULTRA SOUND OVER AND OVER AGAIN. I AM BECOMING AN EXPERT AT READING THE ULTRA SOUND MACHINE AND SPOTTING THE GUSH MYSELF.
WHEN YOU ARE TOLD: 'DON'T COME ALONE. BRING SOMEONE,' YOU DO GET FRIGHTENED BUT GOOD. BUT THE EXTRA PERSON IS THERE TO WRITE DOWN THE DR.'S COMMENTS AS A BACK UP FOR ME, IN CASE I MISS SOMETHING OR MISUNDERSTAND A COMMENT.
AND SO, I AM SO VERY THANKFUL TO HAVE DAYS RIGHT NOW AFTER THE SHOCK AND THE SLEW OF TESTS TO JUST ACT NORMAL- TO TEACH, TO COOK, TO WALK OUTSIDE IN THE LOVELY AIR, TO SEE THE WORLD CONTINUING LIKE ALWAYS. AND I FIND MYSELF LAUGHING AGAIN, WANTING CONTACT WITH MY FRIENDS, WITH MY STUDENTS, WITH STRANGERS.
PERHAPS IT'S ALL A BAD DREAM. MAYBE I CAN JUST FORGET ABOUT IT AND IT WILL DISAPPEAR. BUT MY DEAR COUSIN DOESN'T LET ME GO THAT WAY, NOR DO MY BROTHER AND SISTER-IN-LAW. THEY KEEP ME GROUNDED.I MUST DO WHAT I MUST DO.
FOR ME THAT MEANS HAVING SURGERY, AND EVEN A POSSIBLE SECOND SURGERY IF THEY FIND THAT THEY DON'T HAVE ENOUGH OUT. KNOWING THAT IN ADVANCE IS SO UNSETTLING, TO PUT IT MILDLY.
THEN FOLLOWS SOME TIME TO RECUPERATE, WHATEVER THAT MEANS. ON TO CHEMOTHERAPY, THEN A TIME LAPSE FOR OTHER MEDICINES FOR SOME OTHER PROTEIN LACKING (I TRULY DON'T UNDERSTAND ALL OF THAT), AND THEN ON TO RADIATION.
IT'S LIKE AN UNREAL MOVIE ABOUT TO COME OUT ON THE SCREEN. EXCEPT THAT IT'S ME, MY LIFE. I JUST WANT TO TEACH AND TEACH AND LIVE AND BREATHE AND GIVE TO OTHERS AND NOT HAVE THIS EXPERIENCE.
I THANK YOU ALL WHO ARE READING THIS BLOG, FOR PRAYING FOR ME
CHAYA BAT SARAH BAYLA.
I thank each and every one of you who is including me in your tefillot. May we all know of besorot tovot. SHABAT SHALOM!
THIS PAST WEEK HAS BEEN ONE FILLED WITH TEST AFTER TEST IN PREPARATION FOR ENTRY INTO THE HOSPITAL FOR REMOVAL OF THE 'GUSH'.
THAT INCLUDES BLOOD WORK, A CARDIOGRAM, A BODY IMAGING PROCESS, A 'CT ' SCAN. I DID ALL OF MINE IN A FLURRY, HOPING THAT BY MY SPEED, IT WOULD SPEED UP MY TURN TO QUICKLY ENTER AND HAVE THIS HORRENDOUS MONSTER REMOVED INSTANTLY. BUT SUCH DID NOT HAPPEN. UNFORTUNATELY, THERE ARE MANY WOMEN ON THE LIST OF MY DR. AND OF MANY OTHERS WAITING FOR THIS 'DELUXE' PLEASURE.
IN ONE OF MY BLOOD WORK TESTS, A RATHER INCOMPETENT NURSE COULDN'T FIND MY VEIN EASILY, AND BOTCHED IT UP. BY THE NEXT EVENING, I HAD DEVELOPED AN INFECTION IN MY LEG AND HAND. I COULDN'T STAND OR MOVE MY TOES NOR WALK. IT WAS TRULY A TERRIFYING TIME, AS I DIDN'T KNOW WHAT WAS HAPPENING. BARUCH HASHEM, WITH THE USE OF A CANE WHICH I HAPPENED TO HAVE IN MY HOME, I SOMEHOW MANAGED TO CRAWL, HOLD ON TO WALLS UNTIL THE NEXT DAY, WHEN MY GENERAL PRACTITIONER CONCLUDED THAT IT WAS AN INFECTION, AND SLOWLY, WITH THE USE OF THE CANE, I PROGRESSED BACK TO BEING NORMAL IN MY WALK.
AND NOW AS I WAIT ONE WEEK, 2 WEEKS, SO POSITIVE THAT NOW FOR SURE, MY SURGEON WILL HAVE ME PAGED FOR SURGERY, BUT NOT YET. I HAVE GONE BACK TO HIM AT HIS REQUEST AND HAVE HAD ULTRA SOUND OVER AND OVER AGAIN. I AM BECOMING AN EXPERT AT READING THE ULTRA SOUND MACHINE AND SPOTTING THE GUSH MYSELF.
WHEN YOU ARE TOLD: 'DON'T COME ALONE. BRING SOMEONE,' YOU DO GET FRIGHTENED BUT GOOD. BUT THE EXTRA PERSON IS THERE TO WRITE DOWN THE DR.'S COMMENTS AS A BACK UP FOR ME, IN CASE I MISS SOMETHING OR MISUNDERSTAND A COMMENT.
AND SO, I AM SO VERY THANKFUL TO HAVE DAYS RIGHT NOW AFTER THE SHOCK AND THE SLEW OF TESTS TO JUST ACT NORMAL- TO TEACH, TO COOK, TO WALK OUTSIDE IN THE LOVELY AIR, TO SEE THE WORLD CONTINUING LIKE ALWAYS. AND I FIND MYSELF LAUGHING AGAIN, WANTING CONTACT WITH MY FRIENDS, WITH MY STUDENTS, WITH STRANGERS.
PERHAPS IT'S ALL A BAD DREAM. MAYBE I CAN JUST FORGET ABOUT IT AND IT WILL DISAPPEAR. BUT MY DEAR COUSIN DOESN'T LET ME GO THAT WAY, NOR DO MY BROTHER AND SISTER-IN-LAW. THEY KEEP ME GROUNDED.I MUST DO WHAT I MUST DO.
FOR ME THAT MEANS HAVING SURGERY, AND EVEN A POSSIBLE SECOND SURGERY IF THEY FIND THAT THEY DON'T HAVE ENOUGH OUT. KNOWING THAT IN ADVANCE IS SO UNSETTLING, TO PUT IT MILDLY.
THEN FOLLOWS SOME TIME TO RECUPERATE, WHATEVER THAT MEANS. ON TO CHEMOTHERAPY, THEN A TIME LAPSE FOR OTHER MEDICINES FOR SOME OTHER PROTEIN LACKING (I TRULY DON'T UNDERSTAND ALL OF THAT), AND THEN ON TO RADIATION.
IT'S LIKE AN UNREAL MOVIE ABOUT TO COME OUT ON THE SCREEN. EXCEPT THAT IT'S ME, MY LIFE. I JUST WANT TO TEACH AND TEACH AND LIVE AND BREATHE AND GIVE TO OTHERS AND NOT HAVE THIS EXPERIENCE.
I THANK YOU ALL WHO ARE READING THIS BLOG, FOR PRAYING FOR ME
CHAYA BAT SARAH BAYLA.
I thank each and every one of you who is including me in your tefillot. May we all know of besorot tovot. SHABAT SHALOM!
Tuesday, November 10, 2009
CHAYA'S CANCER ODYSSEY
Why am Idoing this, is beyond me. I want and have no connection to cancer or cancer groups. That is something for others out there.
But then, here I am, a woman who suddenly has my world turned upside down in 5 minutes. 8 a.m. I have my yearly mammogram, and bingo, with my tik beside me with Tehilim which I planned to study later with a women's class, my gym clothes, etc., and I am told that I must have an ultra sound right there and then: a few minutes later, I am told that I will need to book a biopsy, and so at 8:20 a.m I find myself headed for a taxi to take me to Misgav Ledach hospital for a biopsy. All within minutes! I am in total shock! It can't be. I take my mammograms yearly. 6 weeks ago, I was checked manually when I went for my gynocological exam. Nothing was amiss!
How could I, so responsible and careful to check myself, suddenly be thrown into this abyss of terror, fear, shock, anger? For a few moments, I allowed myself to cry and called my cousin as I had to let it out, as well as my oldest son. But alone, as we all are at times, I traveled to be ultra sounded a second time, and to have a biopsy, a terrifying experience for me. My private domain of my lovely breast is mauled, manipulated, or so it seemed to me, and then stuck with needles to freeze an area to be bi0psied.
CHAYA'S CANCER ODYSSEY
SHALOM !
THIS IS MY ENTRY TO A WORLD I HAD NOT INTEREST IN BEING IN. I DO NOT WISH TO BE PART OF ANY CANCER GROUP. I AM NOT INTERESTED OR LOOKING FOR GROUP AFFILIATIONS, TO BE PART OF A GROUP OF WOMEN WHO HAVE WHAT WE ALL DREAD AND ONLY ASSOCIATE WITH OTHERS. OTHERS WAY OUT THERE!
BUT AFTER TOTAL SHOCK AND DISBELIEF, REPULSION AND ANGER, FIGHTING THE FACTS EVERY STEP OF THE WAY, AFTER SOME SHEDDING OF TEARS, AND INDIGNATION AT THE INSULT OF HAVING A TUMOR INSIDE OF MY BREAST, I HAVE HAD NO CHOICE BUT TO ACCEPT IT. I, WHO ALWAYS TAKE YEARLY MAMMOGRAMS FAITHFULLY, WHO ALSO GET CHECKED YEARLY BY A GYNOCOLOGIST, SHOULD SUDDENLY, WITH NO WARNING, GET TOLD THAT THERE IS THIS EVIL GUSH GROWING INSIDE OF ME.
THIS IS THE BEGINNING OF MY ODYSSEY. I AM NOT WRITING TO PARADE IT IN FRONT OF YOU READERS, BUT FOR MYSELF, FOR MY GRANDAUGHTERS, TO HOPEFULLY HELP IN SOME WAY OTHERS WHO ARE GROPING AS I AM TO DEAL WITH THIS WHILE SUPPOSEDLY STILL LEADING 'REGULAR' LIVES, WORKING, TEACHING, LOVING, SHOPPING, TENDING TO OTHERS.
THIS IS MY ENTRY TO A WORLD I HAD NOT INTEREST IN BEING IN. I DO NOT WISH TO BE PART OF ANY CANCER GROUP. I AM NOT INTERESTED OR LOOKING FOR GROUP AFFILIATIONS, TO BE PART OF A GROUP OF WOMEN WHO HAVE WHAT WE ALL DREAD AND ONLY ASSOCIATE WITH OTHERS. OTHERS WAY OUT THERE!
BUT AFTER TOTAL SHOCK AND DISBELIEF, REPULSION AND ANGER, FIGHTING THE FACTS EVERY STEP OF THE WAY, AFTER SOME SHEDDING OF TEARS, AND INDIGNATION AT THE INSULT OF HAVING A TUMOR INSIDE OF MY BREAST, I HAVE HAD NO CHOICE BUT TO ACCEPT IT. I, WHO ALWAYS TAKE YEARLY MAMMOGRAMS FAITHFULLY, WHO ALSO GET CHECKED YEARLY BY A GYNOCOLOGIST, SHOULD SUDDENLY, WITH NO WARNING, GET TOLD THAT THERE IS THIS EVIL GUSH GROWING INSIDE OF ME.
THIS IS THE BEGINNING OF MY ODYSSEY. I AM NOT WRITING TO PARADE IT IN FRONT OF YOU READERS, BUT FOR MYSELF, FOR MY GRANDAUGHTERS, TO HOPEFULLY HELP IN SOME WAY OTHERS WHO ARE GROPING AS I AM TO DEAL WITH THIS WHILE SUPPOSEDLY STILL LEADING 'REGULAR' LIVES, WORKING, TEACHING, LOVING, SHOPPING, TENDING TO OTHERS.
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